08. 03. 2021

Two reports created by WP 10, Task 4 focused on patient-reported outcome assessment in cancer care have been completed and published.

Implementation of patient-reported outcome assessment in routine cancer care – a systematic review of multicentric programs in Europe
This report attempts to add to the existing body of knowledge regarding the implementation of PROMs into routine cancer care by conducting a systematic review to identify PROM programs that allow for both major purposes of PROM assessment in routine cancer care: 1) identification of an individual patient’s symptoms and function to assist in communicating and clinical decision making as well as monitoring his or her outcome and 2) use of group data in quality improvement initiatives including the benchmarking of providers or sites with respect to outcomes. A systematic literature research was conducted to identify existing PROM programs in routine cancer care that allow for decision-making of individual cancer patients as well as provider comparisons. The identified studies revealed relevant information on existing PROM programs and gave valuable insight into issues that need to be considered when setting up such an infrastructure. Some critical issues, however, were hardly addressed, among them costs, staff resources and methods of reporting and responding.
Open document (PDF file, 460 kB)
Scholarly paper: Scheibe et al. Z Evid Fortbild Qual Gesundhwes. 2020;156-157:11-23.

Framework for the implementation of Patient-Reported Outcome Measures (PROMs) in routine cancer care
Following the literature review a framework for implementation of Patient Reported Outcome Measures (PROMS) in routine cancer care was developed to enable providers to better serve individual patients (e. g.: treatment of impaired quality of life) and to enable cancer centers to compare their own patient reported outcomes data with that of others (benchmarking). The recommendations were deduced from the literature review under-taken by the same working group, existing manuals on PROM implementation issued by ISOQOL and the EORTC Quality of life Group, as well as expert opinions. The recommendations are meant to support Comprehensive Cancer Care Networks in implementing PROMs in routine care. They do not include recommendations related to necessary earlier steps, like the development and psychometric testing of PROM instruments.
Open document (PDF file, 140 kB)