SIENNA Genomics. European Project to Survey the Public on ELSI in Genomics

Key Contextual Factors

• The SIENNA project a Horizon 2020 initiative. The goal is to develop a stakeholder involved ethics framework for genomics (and human enhancement and robotics).

Key Components/Steps

• Workshops with stakeholders to have feedback.
• Phone survey of 15 minutes (5 minutes per technology) in 11 countries – 11 000 people in total.
• Panels of 2 hours with citizens in several countries (must find the exact number).

Lessons Learned

• Too much amount of materials and information for participants of the panels – 2 hours per technology is clearly not enough.
• Because all panels occurred in the same time, organizers could not learn from their mistakes and improve the next panel.

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