Back to search
Country/JA: iPAAC logo iPAAC
Action type: Policy recommendations

Objective: Elaborate ethical frameworks for genomics. The main ethical frameworks that results from this project are code of conduct, proposals for enhancing the ethical and legal framework.

Rationale: Create a stakeholder informed ethics.

Implementation status: Pilot


Key Contextual Factors

  • The SIENNA project a Horizon 2020 initiative. The goal is to develop a stakeholder involved ethics framework for genomics (and human enhancement and robotics).

Key Components/Steps

  • Workshops with stakeholders to have feedback.
  • Phone survey of 15 minutes (5 minutes per technology) in 11 countries – 11 000 people in total.
  • Panels of 2 hours with citizens in several countries (must find the exact number).

Lessons Learned

  • Too much amount of materials and information for participants of the panels – 2 hours per technology is clearly not enough.
  • Because all panels occurred in the same time, organizers could not learn from their mistakes and improve the next panel.

Download PDF

Contact

  • Heidi Howard, Emilia Niemiec