Key Contextual Factors
- In France, breast cancer is the leading cause of cancer mortality in women. After a past decade of the national breast cancer screening implementation, the program had to be evaluated and questioned in order to continuously improve.
- Aware of the aversion feeling from general population concerning the controversy (benefits/harms ratio), as well as the lack of general information in breast cancer, the French National Cancer Institute has been mandated by MoH and has setted up a scientific and citizen consultation, to give the floor to all the women and health professionals.
- Creation of an independent scientific committee to discuss which topics must be evocated in the consultation
- Launch of a public website dedicated to the citizen & scientific consultation.
- Workshop and constitution of the “citizens’ conference”: A panel of women from diverse social origins, produced a collective view on what they think about the program and their expectations.
- Workshop and constitution of the “professionals’ conference”: A panel of health professionals, not experts in breast cancer but implicated in the program in their daily practice.
- Audition of experts and analysis of other contributions submitted.
- Drafting a joint contribution arising from the scientific committee.
- Public meeting of the citizen and scientific consultation closing (reporting results).
- Implementation of the Breast Cancer screening renovation’s plan; with new actions in public health, organization, research and communication.
Main Impacts / Added Value
- The main added value in using an independent and participatory process, permits to gather brakes straight from the public concerned by screening.
- By the mean of a citizen consultation, the ministry was able to take into account the general population feeling concerning the need of a better information and transparency related to the benefits and harms trade-offs in breast cancer screening and to adapt the public policy.
- Gain in credibility thanks to the outsourcing process of doing a citizens’ consultation.
- Taking into account the needs of citizens, with neutrality.
- Benefits from the multifocal approach.
- Complete overhaul of the information’s book intended for women and health professionals.
- Current development of decision-aids(starting with the creation of a special website dedicated to the program).
- Improvement of the quality and the accessibility to the program.
References and Documentation
- Institution/organization: French National Cancer Institute (INCa)
Department/lead: Frederic de Bels, Head of Screening Department, Hub of Public Health and Cares; Johanna Tarahount, Project Manager of the Breast Cancer Screening Program, Hub of Public Health and Cares; Thomas Dubois, Head of International and European Affairs Department, IPAAC Referent
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