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Action type: Policy recommendations

Problem and objective: PROMs have proven to improve patients’ health and survival when used for symptom monitoring. They also provide an essential instrument for quality management. Although widely accepted by patients and providers, PROM implementation is still at an early stage in many settings. This one-pager and the accompanying material intends to support the implementation of PROMs.

Implementation status: Published recommendations for implementation

Key Contextual Factors

  • The literature review included results from studies conducted in European countries and was not limited to specific settings. Specific contextual factors should thus not affect the recommendations’ potential for implementation in particular member states.

Key Components/Steps

Ten recommendations were derived described in more detail here. Briefly, the ten recommendations refer to the following:

  • Identification of the specific purpose of PROM collection (e. g. symptom monitoring or benchmarking, or both)
  • Definition of the patient population as well as the audience
  • Identification of the stakeholders that need to be involved
  • Modes of data collection, presentation, selection of datasets, and how to use PROMs to improve practice
  • Monitoring and sustainability

Main Impacts / Added Value

  • The recommendations provide guidance to everyone who acknowledges the need to collect PROMs in cancer patients systematically. The recommendations are meant to enable individual providers to better care for their patients and to allow patients to discuss their health and treatment with providers. The systematic use of these recommendations, at all levels (setting, regional or national), will enable the evaluation of the (quality of the?) care provided.

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References and Documentation

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